Posts tagged acceptance
All good things

After the overwhelming response to last week’s post I realized a follow up was needed so this week I start there. But life doesn’t stop while we’re discussing socially charged issues and this week it was announced that Hamilton would be closing up shop in Chicago. Despite, in spite or because of Adelaide’s challenges our time in Chicago has been pretty incredible. Do we stay? Do we go? Time will tell but if you’ve learned anything about us you know we’ve got this.

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Big brother

I used to envy the way Jackson could see Adelaide without the sadness that tinged my view. However, as Jackson is getting older he is gradually beginning to understand how Adelaide is different from a neuro-typical sister and it pains me to watch the sadness and worry creep into his life. There is no question that their special-needs sibling bond adds so much to both of their lives but like everything else in this parenting circus it is a balancing act. A really stinking cute balancing act, but one all the same.

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Not alone

I’ve had a love/hate relationship with social media for years. When an old post I’d written came up in my Facebook memories it reminded me how far I’ve come on this special needs parenting journey. Navigating the emotional minefield of a social media scroll used to be excruciating and, honestly, still has its moments. But as I’ve connected with more and more special needs families the isolation and loneliness I once felt has been replaced with warmth and community. Grateful everyday for my cohort of fierce caregivers who are a constant reminder that no matter what challenge, emotional or otherwise, we experience we are not alone.

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Inchstones

What do Hamilton, developmental disabilities and my motto, “taking life one inchstone at a time” all have in common? They were in full effect last Saturday when, after several months, I once again took our kids to the theater to visit Miguel/Daddy at work. I’m slightly ashamed to admit that I’ve written over 30 blogs posts (yes, I counted them) and I have yet to do a deep dive explanation of my own motto. I can tell you are clearly as shocked and appalled by this as I am. So let’s get to it!

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The Adelaide effect

At the end of the day I’m a woman who is a mom with a child that happens to have special needs. Those descriptors should make us more interesting not make those around us uncomfortable. This week I discuss how as Adelaide gets older, and in turn her disabilities more visible, the way people treat her is changing. How do I recommend you interact with a caregiver and her child with disabilities? Read on to find out!

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Wonder Woman

Over the course of this blog I have spent significant time noting how Adelaide is different, commenting on what she is not able to do and the dreams I mourn that I once had for her. I could easily write a post about our last year in review, which would inevitably make me acknowledge all of the skills she’s lost and trials she’s faced. Honestly, that sounds fairly miserable. So, instead, I would like to take a moment to focus on all the amazing things that Adelaide is still able to do. The secret ways she communicates with us and all of the wonderful qualities that make Miss A the strongest person I know because she truly is a Wonder Woman.

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Happy birthday, Adelaide!

Next Wednesday, October 17th, Miss Adelaide Grace will turn 3. Her birthdays have always been bittersweet: While we are thrilled that she has spent another year with us, (and goodness knows I LOVE planning a party), we are reminded that another year has gone by and she is still struggling and seizing. I mean, I’m pretty aware of this on a day to day basis, but birthdays are a forced reckoning.

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