Posts tagged acceptance
Not alone

I’ve had a love/hate relationship with social media for years. When an old post I’d written came up in my Facebook memories it reminded me how far I’ve come on this special needs parenting journey. Navigating the emotional minefield of a social media scroll used to be excruciating and, honestly, still has its moments. But as I’ve connected with more and more special needs families the isolation and loneliness I once felt has been replaced with warmth and community. Grateful everyday for my cohort of fierce caregivers who are a constant reminder that no matter what challenge, emotional or otherwise, we experience we are not alone.

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Inchstones

What do Hamilton, developmental disabilities and my motto, “taking life one inchstone at a time” all have in common? They were in full effect last Saturday when, after several months, I once again took our kids to the theater to visit Miguel/Daddy at work. I’m slightly ashamed to admit that I’ve written over 30 blogs posts (yes, I counted them) and I have yet to do a deep dive explanation of my own motto. I can tell you are clearly as shocked and appalled by this as I am. So let’s get to it!

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The Adelaide effect

At the end of the day I’m a woman who is a mom with a child that happens to have special needs. Those descriptors should make us more interesting not make those around us uncomfortable. This week I discuss how as Adelaide gets older, and in turn her disabilities more visible, the way people treat her is changing. How do I recommend you interact with a caregiver and her child with disabilities? Read on to find out!

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Wonder Woman

Over the course of this blog I have spent significant time noting how Adelaide is different, commenting on what she is not able to do and the dreams I mourn that I once had for her. I could easily write a post about our last year in review, which would inevitably make me acknowledge all of the skills she’s lost and trials she’s faced. Honestly, that sounds fairly miserable. So, instead, I would like to take a moment to focus on all the amazing things that Adelaide is still able to do. The secret ways she communicates with us and all of the wonderful qualities that make Miss A the strongest person I know because she truly is a Wonder Woman.

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Happy birthday, Adelaide!

Next Wednesday, October 17th, Miss Adelaide Grace will turn 3. Her birthdays have always been bittersweet: While we are thrilled that she has spent another year with us, (and goodness knows I LOVE planning a party), we are reminded that another year has gone by and she is still struggling and seizing. I mean, I’m pretty aware of this on a day to day basis, but birthdays are a forced reckoning.

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Cone of Possibility

This week marks our two year anniversary in Chicago. I wrote a whole post about the three months leading up to that move and couldn’t come up with a point, other than I believe it would make an excellent Oscar-nominated vehicle for the likes of the next Julia Roberts/Sandra Bullock. Screenwriters, feel free to hit me up once I’ve written the book.

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