Posts tagged communication
The Adelaide effect

At the end of the day I’m a woman who is a mom with a child that happens to have special needs. Those descriptors should make us more interesting not make those around us uncomfortable. This week I discuss how as Adelaide gets older, and in turn her disabilities more visible, the way people treat her is changing. How do I recommend you interact with a caregiver and her child with disabilities? Read on to find out!

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Chatty Addy

As Adelaide grows more alert she is starting to communicate with us again. After months of near silence from her, I feel like a new mom getting to know my baby... except she's three and a legit medical mystery. During a recent hair drying sesh she let us know she was still herself by giving us some classic Miss A side eye... she's just much, much, louder.

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That hospital life

While chilling at the hospital with Adelaide for three days last week, I was struck by how comfortable we have become during these stays. Now, to be clear, being home is always better. Adelaide is more alert at home, I despise our family being separated and there is a special place in hell for hospital showers. But like anything you just get used to it all. Dare I say it, but there are even some aspects that I, <gasp>, enjoy.

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How's Adelaide doing?

Three words, grammatically so simple, but connotatively so complicated. I mean, its weird, right, if someone doesn’t ask that when they see me? Don’t get me wrong, I am beyond grateful for everyone’s care and concern but the question is daunting. So much goes into calculating the answer: how much does the person really want to know? How well do they know the situation? What was the last update they received? What can I emotionally handle in response? And most importantly, how much time do we have? 

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