Kelly Cervantes

Meet Kelly...

Photo Credit: Rachel Friedman Photogrpahy

Photo Credit: Rachel Friedman Photogrpahy

 
 

An unexpected journey...

Hi there and thank you so much for your interest in our family’s journey with a special needs child! I am the mother of two incredible children, Jackson (6yo) and Adelaide (3yo) and wife to the ludicrously loving, talented and handsome, Miguel Cervantes (Hamilton: The American Musical).

In May 2016, Miguel and I received two life-changing pieces of news: Miguel had landed the starring role of Alexander Hamilton in Hamilton: An American Musical in Chicago and, our then 7-months-old baby, Adelaide was diagnosed with epilepsy and eventually, infantile spasms, a severe form of childhood epilepsy. Choosing family first and the role of the lifetime, we made the move to Chicago where we currently live. 

I transitioned from being our family’s primary bread winner to a stay-at-home mom/nurse/pharmacist/therapist and it was hard, like, REALLY hard. I found solace in a community of other special needs families and in 3am Google dumpster dives learning everything I could about my daughters condition. Eventually, I found my voice and purpose with the non-profit, Citizens United for Research in Epilepsy (CURE) and am currently a board member. My truth is that, at this point, there is little we can do to definitively improve Adelaide’s condition: we are waiting for science to catch up to her. But I can raise money and awareness to help push that science forward a little bit faster. By organizing fundraising campaigns, speaking at epilepsy events across the country, writing my blog “Inchstones”, or hosting CURE’s podcast “Seizing Life”, I am able to feel productive and like I’m helping my Adelaide as well as all the Adelaide’s to come.

In between Jackson's activities, Adelaide's treatments, and a Hamilton event or two, my advocacy and fundraising efforts fulfill me in ways I never could have imagined. My hope is that by publicly sharing our family’s journey with epilepsy and the real life moments that come with parenting a special needs child, other parents in similar situations will learn they are not alone. If I can also provide a resource for their friends and family to better understand what they are experiencing, then that’s an awesome bonus. Thank you again for stopping by and I invite you to join me in taking life one inchstone at a time.