Posts tagged parenting
My lighthouse

Time has had a jarring presence in our house lately: speeding up then slowing down, each day blending into the next, not adhering to the laws of physics. I feel like I’m adrift with no land in sight. But there is one thing helping me keep my bearings amidst these rough waters: Jackson. I know everyone thinks their kid is incredible but this kid, Adelaide’s big brother, is really something else. He is my lighthouse in the storm. 

Photo credit: Jennifer Loomis 

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What's next?

I call this selfie, “Hiding from life”. I don’t know about all of you, but this Fall is doing a number on my sanity. Pretty sure I blinked and we were already halfway through September. Typically, I thrive on being busy but this season just has me wanting to crawl back under the covers, and with so much uncertainty in our life it’s not hard to see why. I took this week to check back in with me and remind myself that sometimes the best answers to the big questions are little. In typical Adelaide fashion she helped me along with some special moments of her own.

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Privacy Schmivacy

As parents we learn to live with very little privacy. I mean seriously, when was the last time you used the bathroom in peace? But what about when you have physical therapy, palliative care, an oxygen tank delivery, and your daughter’s usual home nursing care all in your home before noon. We are incredibly grateful that Adelaide is able to receive as many services in our home as she is but I can’t help but feel sometimes that we live in a much smaller, but still very public, Grand Central station.

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Summertime stressin

These last couple weeks have been emotionally challenging and not for any one specific reason that I can determine. Don’t get me wrong I have laid in bed, stood in the shower and gotten lost in thought at a red traffic light coming up with all sorts of reasons as to why my heart is now paying rent to my throat. The winter holiday season is a well-known anxiety fueled host serving up a feast of emotional booby traps. But, maybe not so well-known, is that the summer season offers its own debilitating fare.

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Code brown

Are you eating? Thinking of eating? Just eaten? Maybe wait to read this post till later. I’m typically motivated to write about whatever is dominating our life at the time and honestly, right now, its poop. This is the life folks, just soak in that glamor! Up until last week, Adelaide was frequently constipated. This was likely due to a combination of having low tone, her mast cell activation syndrome and, certainly not helped by the fact that nearly every drug she is on lists constipation as a side effect. I’m going to pause here and remind everyone to be careful what they wish for…

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Dependence day

Yesterday, Miguel and I celebrated 10 years of marriage - which sort of blows my mind. The irony of getting married on Independence Day was not lost on us but Miguel found out he would be performing in the Broadway bound American Idiot in San Francisco on our original wedding date soooo we got our first taste of the many curve balls life would eventually hurl at us. While reminiscing on the last decade a few valuable lessons rose to the top. So, I decided to share them in a blog, and not just for my reader’s benefit but also as a reminder to myself for when things aren’t going quite as well… which is inevitable.

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Family planning

We only ever wanted to have two children. That was always the plan. A) I had no interest in being outnumbered by my kids and B) while growing a child in your body is an unreal experience, the gas, aches, nausea, swelling and all the rest of it is no joke. When Adelaide was born seemingly healthy, I thanked my uterus for its service and mentally closed up shop. Then life got complicated and we were faced with a whole new set of family planning questions.

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